News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

08 August 2024
Top-5 Frequently Asked Questions from July 2024
Last month we received a number of questions about education courses, the National Disability Insurance Scheme (NDIS), FlexEquip eligibility and more....

06 August 2024
Equipment Spotlight: Handy Bar
This nifty little tool is for people who need a little extra support getting in and out of the car. The portable support handle fits into the car's pa...

05 August 2024
Get dead set this dying to know day
8 August 2024 is dying to know day. If you haven’t already undertaken proactive planning for your future care and documented your choices for end of l...

11 July 2024
Top-5 Frequently Asked Questions: June 2024
As we reach the halfway point of 2024, the MND Infoline has responded to over 500 enquiries. June’s frequently asked questions explore topics such as...

11 July 2024
Biobank, Organ and Tissue Donation: Dontate Life Week, July 2024
DonateLife week is a national awareness campaign that takes place each year in July. This year’s campaign is from Sunday 28 July – Sunday 4 August 202...

24 June 2024
Leaders in the motor neurone disease field arrive in Canberra today
Every day two Australians are diagnosed with motor neurone disease (MND) and two die from the disease. With no cure and an average life expectancy of...

17 June 2024
The Day of Hope and Remembrance 2024: Thank you for attending
Thank you to everyone who joined us at this special and inspiring event. Together we joined in strength and solidarity for people living with MN...

13 June 2024
Stay Warm with MND Beanies, Socks, Hoodies and Scarves This Winter
Stay warm while you support the important work being done by MND NSW to improve the lives of people living with MND and their families. From classic b...

07 June 2024
Top-5 Frequently Asked Questions: May 2024
We received lots of questions on a variety of topics at the MND info line in May, including, robotic feeders, booking accommodation along with c...

05 June 2024
Early Signs of Motor Neurone Disease
Motor Neurone Disease (MND), also known as Amyotrophic Lateral Sclerosis (ALS), is an uncommon but devastating disease that affects the nerves (neuron...

05 June 2024
MND Alliance Patient Fellows Program & FightMND Grant: Applicaitons Open
Applications are open - Apply now! Attend the MND Association's International Symposium on ALS/MND & the International Alliance Conferences in Mon...

24 May 2024
Rocky's Racing Adventure
Surrounded by the smell of burning rubber and the loud, heart-racing hum of F1 race cars, Rocky Pirrottina watched his team take victory in Melbourne...