Information about participating in research
Are you thinking about participating in an MND related research project? There are some things you might like to think about before you start.
Participating in research
MND NSW is a strong advocate for the advancement of research into motor neurone disease. In Australia there are several ways in which you can actively participate in research into motor neurone disease. While MND NSW supports research into MND, individuals need to carefully consider and determine if participation is right for them. You can find out how you can participate in research in this section.
Australian MND Registry
MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.
A key component of the partnership is the MiNDAUS Patient Registry.
Brain Donor Program & Biobank
Based at Neuroscience Research Australia (NeuRA), there is a research clinic focusing on frontotemporal dementia and associated syndromes, including MND. Brain donation is when a person and their family decide to donate their brain for medical research following death.
Find out more
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