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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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We'd like to say a big thank you to Kylie and Jenna who hosted the MND Walk for Elisa Baker with family and friends, held on April 26. They raised over $6,300 for MND NSW, all in memory of Elisa, who sadly passed away from MND earlier this year. Jenna has shared their story about the event:

From Sunday 11 May to Saturday 17 May, Australia celebrates National Palliative Care Week. Now in its 30th year, the week raises awareness about the value of palliative care and encourages Australians to start meaningful conversations about future care needs.

As carers we often find ourselves doing tasks that we never imagined we would be doing to support the people we love the most, especially with daily living activities. Safety is our focus and in the spirit of April Falls Month, we are sharing information about the resources and training available for carers to build your skills and confidence with manual handing.

Terminology and acronyms in the health and disability sectors can be confusing. An example of this is the difference between motor neurone disease (MND), amyotrophic lateral sclerosis (ALS) and Lou Gehrig’s Disease. In Australia we generally use the term motor neurone disease or MND, so what’s the difference between MND, ALS and Lou Gehrig’s Disease?

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