Between January and March, we connected with carers who are part of the MND NSW carer program. MND NSW would like to thank you for generously giving up your precious time and sharing your unique experience with us. It was an absolute privilege to hear your stories.

We'd like to say a big thank you to Kylie and Jenna who hosted the MND Walk for Elisa Baker with family and friends, held on April 26. They raised over $6,300 for MND NSW, all in memory of Elisa, who sadly passed away from MND earlier this year. Jenna has shared their story about the event:

Another month has flown by, and the MND NSW Info Line has been busy, responding to over 100 enquiries. In April, common questions were about clinical trials, what MND doesn’t affect, itchiness and sleep difficulties.

From Sunday 11 May to Saturday 17 May, Australia celebrates National Palliative Care Week. Now in its 30^th year, the week raises awareness about the value of palliative care and encourages Australians to start meaningful conversations about future care needs.

As carers we often find ourselves doing tasks that we never imagined we would be doing to support the people we love the most, especially with daily living activities. Safety is our focus and in the spirit of April Falls Month, we are sharing information about the resources and training available for carers to build your skills and confidence with manual handing.

If you can't find the equipment you need in the FlexEquip standard range, check out the Miscellaneous Items category on the FlexEquip website—you might find exactly what you're looking for!

We are pleased to announce Professor Matthew Kiernan AM as the guest speaker for our annual Day of Hope and Remembrance, 21 June 2025.

Terminology and acronyms in the health and disability sectors can be confusing. An example of this is the difference between motor neurone disease (MND), amyotrophic lateral sclerosis (ALS) and Lou Gehrig’s Disease. In Australia we generally use the term motor neurone disease or MND, so what’s the difference between MND, ALS and Lou Gehrig’s Disease?