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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Eye Gaze Kits are now available to MND NSW participants for short term hire.

Eye Gaze Kits are now available for 3 months hire to participants with a diagnosis of MND through our FlexEquip equipment service.

Following the Covid-19 lockdowns and restrictions that were in place during 2020 and 2021, the NSW Government introduced the Dine & Discover and the Stay vouchers to help local businesses by encouraging the community to support entertainment and recreation businesses, including cultural institutions, live music, arts venues, and accommodation providers.

This week is National Palliative Care Week (NPCW) which aims to raise awareness and understanding of palliative care in Australian communities.

The theme of this year’s National Palliative Care Week (NPCW); ‘Palliative Care It’s your right’, reinforces that palliative care is a universal human right and that all Australians should have access to high-quality palliative care when and where they need it.

MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.

Around 10% of people diagnosed with MND have a ‘familial’ form of the condition; meaning there are two or more affected members within their family. Most people diagnosed with MND have what is called ‘sporadic’ MND, so although there may be a genetic element involved, other family members will not be affected.

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Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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