Living with MND

MND NSW conducts regular education, information and other events for people living with motor neurone disease, family members, carers and friends. These are usually held in Sydney at the MND NSW Centre in Gladesville or other local venues. Sessions are also scheduled in other areas of NSW and in the ACT.

There is usually no charge to attend an MND NSW education, information or other event for people living with MND. This includes the person with motor neurone disease, family member/s, carer or friend. However, bookings are essential.

28
Sep
2022

Chat and Connect - Online

28 Sep 2022 (10:00 am - 11:30 am)
Online

Everyone is welcome to join our next Chat and Connect, an online support group.

This group is open to everyone across NSW, ACT and NT, especially those living in regional or remote areas.

28
Sep
2022

Genetic counselling and testing - Research summary from Ashley Crook

28 Sep 2022 (6:00 pm - 7:00 pm)
Online

This online webinar is being provided by Ashley Crook and is a summary of her findings from her thesis. Ashley is a certified genetic counsellor and PhD candidate.

Genetic Counselling & testing for MND and FTD – Online Webinar

29
Sep
2022

North Sydney Support Group

29 Sep 2022 (10:00 am - 12:00 pm)

This is an in person support group for people who are supported by MND Advisor Lucy, that live in Northern Sydney and the Northern Beaches.

This event is being held at Hornsby RSL Club

29
Sep
2022

Kitchen Table Conversations

29 Sep 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

04
Oct
2022

Central Coast Support Group

4 Oct 2022 (10:00 am - 12:00 pm)

This is an MND Support Group for people who are supported by Advisor Kath, that live on the Central Coast.

This event will be held in Erina.

05
Oct
2022

MND Youth Hub

5 Oct 2022 (7:00 pm - 8:00 pm)
Online

MND Youth Hub - Online

For young carers aged 13 - 21 years across Australia

06
Oct
2022

Central & Eastern Sydney Support Group

6 Oct 2022 (10:00 am - 11:00 am)
Online

This is an online group for people who are supported by MND Advisor Daisy, that live in the Eastern Suburbs, Inner West and Southern Suburbs of Sydney. 

12
Oct
2022

Newcastle and Hunter Support Group

12 Oct 2022 (10:45 am - 12:30 pm)

This is a group for people who are supported by MND Advisor Shannon, that live in the Newcastle and Hunter area.

This group will be held at Merewether Bowling Club.

13
Oct
2022

Campbelltown Support Group

13 Oct 2022 (10:00 am - 12:00 pm)

The Campbelltown Support Group meets bi-monthly at Campbelltown Arts Centre. This is a group for people who are supported by MND Advisor Laura, that live in South Western Sydney.

This group will be held in person at the Arts Centre.

13
Oct
2022

Kitchen Table Conversations

13 Oct 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

15
Oct
2022

Day of Hope and Remembrance

15 Oct 2022 (1:00 pm - 2:30 pm)

We are pleased to announce we will be holding our annual Day of Hope and Remembrance this year in person on Saturday 15th October 2022.

17
Oct
2022

North West Support Group

17 Oct 2022 (10:00 am - 11:00 am)
Online

The North West Support Group currently meets bi-monthly and is held online with your MND Advisor Savannah

19
Oct
2022

Illawarra Support Group

19 Oct 2022 (10:00 am - 12:00 pm)

The Illawarra Support Group meets monthly in the Warrawong area or online.

Venue for this group is Port Kembla Hospital

19
Oct
2022

ACT Support Group

19 Oct 2022 (10:30 am - 12:00 pm)

The ACT/Southern NSW Morning Tea is held bi-monthly at Deakin in Canberra or online.

This event will be in person in Deakin

20
Oct
2022

Kitchen Table Conversations

20 Oct 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

21
Oct
2022

Supporting Children through bereavement

21 Oct 2022 (10:00 am - 11:00 am)
Online

This webinar will provide information to caregivers and families about grief and bereavement, to help equip them with the knowledge and resources to better support their grieving children as well as themselves.

This webinar is provided by MND Victoria and The Australian Centre for Grief and Bereavement

29
Oct
2022

Link & Learn - Carers Weekend

29 Oct 2022 to 30 Oct 2022 (10:00 am - 3:00 pm)

These weekends are open to carers of people with MND, including our young carers.

This is a weekend to relax, revive and connect.

10
Nov
2022

Kitchen Table Conversations

10 Nov 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

16
Nov
2022

Illawarra Support Group

16 Nov 2022 (10:00 am - 12:00 pm)

The Illawarra Support Group meets monthly in the Warrawong area or online.

Venue for this group is Port Kembla Hospital

17
Nov
2022

Western Sydney Support Group

17 Nov 2022 (10:00 am - 12:00 pm)

Western Sydney support group

This is a group meeting for people who are supported by our MND Advisor Cathy, that live in Western Sydney and the Blue Mountains.

24
Nov
2022

Kitchen Table Conversations

24 Nov 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session

29
Nov
2022

North Sydney Support Group

29 Nov 2022 (10:00 am - 12:00 pm)

This is an in person support group for people who are supported by MND Advisor Lucy, that live in Northern Sydney and the Northern Beaches.

This event is being held at Hornsby RSL Club

05
Dec
2022

North West Support Group

5 Dec 2022 (10:00 am - 11:00 am)
Online

The North West Support Group currently meets bi-monthly and is held online with your MND Advisor Savannah

06
Dec
2022

Central Coast Support Group

6 Dec 2022 (10:00 am - 12:00 pm)

This is an MND Support Group for people who are supported by Advisor Kath, that live on the Central Coast.

This event will be held in Erina.

07
Dec
2022

Newcastle and Hunter Support Group

7 Dec 2022 (10:45 am - 12:30 pm)

This is a group for people who are supported by MND Advisor Shannon, that live in the Newcastle and Hunter area.

This group will be held at Merewether Bowling Club.

07
Dec
2022

MND Youth Hub

7 Dec 2022 (7:00 pm - 8:00 pm)
Online

MND Youth Hub - Online

For young carers aged 13 - 21 years across Australia

08
Dec
2022

Campbelltown Support Group

8 Dec 2022 (10:00 am - 12:00 pm)

The Campbelltown Support Group meets bi-monthly at Campbelltown Arts Centre. This is a group for people who are supported by MND Advisor Laura, that live in South Western Sydney.

This group will be held in person at the Arts Centre.

08
Dec
2022

Kitchen Table Conversations

8 Dec 2022 (10:30 am - 11:30 am)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Morning session

14
Dec
2022

ACT Support Group

14 Dec 2022 (10:30 am - 12:00 pm)

The ACT/Southern NSW Morning Tea is held bi-monthly at Deakin in Canberra or online.

This event will be in person in Deakin with a guest speaker.

15
Dec
2022

Kitchen Table Conversations

15 Dec 2022 (7:00 pm - 8:00 pm)
Online

Carers Kitchen Table Conversations - an opportunity for carers to share some time with other MND carers as we talk about our day to day lives.

Evening session