MND impacts the lives of many – the person with MND, and their family and friends. Today we are posting a survey to the family carer of MND NSW members who died from MND in 2016, 2017 and 2018. The survey is part of a research study being conducted by La Trobe University which hopes to gain insight into the experiences of family carers whose family member died from MND between 2016-2018. This valuable information will help us to better understand the needs of carers. We encourage you to participate if you receive a survey in the post by completing and returning the survey in the reply paid envelope provided by 5 June. Alternatively you can complete the survey online at https://is.gd/mndbereavementsupport. If you prefer a paper copy and you have not received one in the post by 23 May, please let us know. If you have any questions regarding the study, please contact Leanne Jiang on
Survey for family carers whose family member died from MND between 2016-2018

Latest News

Keep Connecting with Communication Aids this Speech Pathology Week 2026
MND can affect the nerves and muscles used for communication including speaking, facial expressions, gestures, and swallowing. Approximately, 80% of p...

Top 5 Frequently Asked Questions from July 2026
Each month the MND InfoLine receives a wide range of enquiries from people living with MND, their families, and health professionals. We have rounded...

Dying to Know Day is about Starting Important Conversations
Dying to Know Day (8 August 2026) is a time for everyone to have important conversations about death and dying with purpose, love, and a sense of lega...

Vale Bob Montgomery
We are deeply saddened to hear of the sudden passing of Bob Montgomery. For many years, Bob dedicated himself to raising vital funds and awareness for...
“We can't do this alone. But together, we're unstoppable.”