To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.


Julie’s Story 

Julie has been working for MND New South Wales for eight years.

This week is National Palliative Care Week which aims to raise awareness and understanding of palliative care in the Australian community. This year’s theme is ‘Palliative Care, it’s more than you think.’

There are many misconceptions about Palliative Care, including that it is something that people only receive in the very last days of life. This week is a good time to learn more about the role of Palliative Care, how to access it and how it can support people with Motor Neurone Disease.

For MND Week this year, we asked you to share your stories. We were blown away by the beautiful, heartfelt stories you shared about your MND journey, and the MND experiences of your loved ones. We'd like to say thankyou for taking the time to share with us, and to raise awareness of the impact motor neurone disease has.

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