Skip to main content

News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

Browse Stories

24 June 2024

Leaders in the motor neurone disease field arrive in Canberra today

Every day two Australians are diagnosed with motor neurone disease (MND) and two die from the disease. With no cure and an average life expectancy of...
17 June 2024

The Day of Hope and Remembrance 2024: Thank you for attending

Thank you to everyone who joined us at this special and inspiring event.  Together we joined in strength and solidarity for people living with MN...
13 June 2024

Stay Warm with MND Beanies, Socks, Hoodies and Scarves This Winter

Stay warm while you support the important work being done by MND NSW to improve the lives of people living with MND and their families. From classic b...
07 June 2024

Top-5 Frequently Asked Questions: May 2024

 We received lots of questions on a variety of topics at the MND info line in May, including, robotic feeders, booking accommodation along with c...
05 June 2024

Early Signs of Motor Neurone Disease

Motor Neurone Disease (MND), also known as Amyotrophic Lateral Sclerosis (ALS), is an uncommon but devastating disease that affects the nerves (neuron...
05 June 2024

MND Alliance Patient Fellows Program & FightMND Grant: Applicaitons Open

Applications are open - Apply now! Attend the MND Association's International Symposium on ALS/MND & the International Alliance Conferences in Mon...
24 May 2024

Rocky's Racing Adventure

Surrounded by the smell of burning rubber and the loud, heart-racing hum of F1 race cars, Rocky Pirrottina watched his team take victory in Melbourne...
24 May 2024

Breath of Hope: Championing Cough Assistance in MND Care

Stephanie van Hilten has been a respiratory physiotherapist for 34 years, working in many areas of the cardiothoracic specialty - intensive care, surg...
24 May 2024

National Volunteer Week 2024 - Thank You to our Amazing Volunteers!

This week is National Volunteer Week, and we'd like to take the opportunity to thank all our amazing volunteers.  We see you helping us at the of...
23 May 2024

Thank you to our wonderful Community Fundraisers

We’d like to say a big thank you to our community fundraisers for their amazing efforts! Recently they've completed runs, held Drink Tea for MND event...
15 May 2024

Jason’s Story: Behavioural Change and MND

In this article Jason shares his experience managing behavioural change. The article also shares information about potential causes and possible signs...
14 May 2024

Access to Palliative Care: Better Quality of Life

Palliative care is more than end of life care. It is a family-centered model of care that focuses on quality of life. It is for everyone who has a lif...