News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Top-5 Frequently Asked Questions from September 2024
September’s Top-5 feature questions about, how to maintain proper nutrition, when to consider palliative care, staying informed about research and man...
Thank you to our Community Fundraisers
We’d like to say a big thank you to our community fundraisers for their fantastic efforts! Recently they've completed walks, held Drink Tea for MND ev...
Some people with MND may also be diagnosed with dementia: Learn about MND/FTD
We’re getting involved in Dementia Action Week (16-22 September 2024), to help raise awareness about MND with Frontotemporal Dementia or MND/FTD. Deme...
Top-5 Frequently Asked Questions from August 2024
The MND NSW Info Line was busy in August, with a range of topics covered in this month’s Top-5 including, questions about Riluzole, the MiNDAus regist...
Equipment Spotlight: Pressure Care
Is the skin on your bottom, heals, elbow, shoulder or the back of your head sore? Maybe you’re experiencing pain and discomfort from sitting in a chai...
Volunteer Spotlight - meet Jill
Since 2010, Jill Paton has been coming to volunteer for MND NSW at our Gladesville office, often helping us to pack merchandise, and our Print News to...
Speech Pathology Week: Communication aids and equipment
This Speech Pathology Week we are sharing the range of communication aids available from MND NSW and FlexEquip. Communicate your way – is the theme of...
Shelley's MND Marathon
Shelley is putting in a mega effort to run 700km in 3 months to raise awareness about MND, and raise vital funds for MND NSW so we can be there for pe...
Top-5 Frequently Asked Questions from July 2024
Last month we received a number of questions about education courses, the National Disability Insurance Scheme (NDIS), FlexEquip eligibility and more....
Equipment Spotlight: Handy Bar
This nifty little tool is for people who need a little extra support getting in and out of the car. The portable support handle fits into the car's pa...
Get dead set this dying to know day
8 August 2024 is dying to know day. If you haven’t already undertaken proactive planning for your future care and documented your choices for end of l...
Top-5 Frequently Asked Questions: June 2024
As we reach the halfway point of 2024, the MND Infoline has responded to over 500 enquiries. June’s frequently asked questions explore topics such as...