Skip to main content

News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

Browse Stories

11 February 2025

Are you emergency ready?

While we are the lucky country, as Australians we constantly face natural disasters. Summertime can signal the devastating impact that floods, fire an...
03 February 2025

Top-5 Frequently Asked Questions from January 2025

Welcome to the first frequently asked questions blog of 2025. MND NSW staff are busy organising and planning for the upcoming 12 months. Keep an eye o...
03 February 2025

Feeding Tubes Save Lives: Feeding Tube Awareness Week 2-8 February 2025

We take part in raising awareness about feeding tubes because for many people with MND, a feeding tube can improve quality of life and prolong life. M...
23 January 2025

Volunteer Spotlight - Meet Rita

Rita Mir has been volunteering for MND NSW since 2022, spending time assisting in Bondi and in our Gladesville office helping with activities that sup...
21 January 2025

Check your device: Medical devices and personal alarms affected by the 3G Mobile Network Closure

This is a reminder to check that your personal safety pendant, fall detection system or other personal alarm or medical device is connected to the 4G...
16 January 2025

What’s the Difference Between MND, ALS and Lou Gehrig’s Disease?

Terminology and acronyms in the health and disability sectors can be confusing. An example of this is the difference between motor neurone disease (MN...
22 December 2024

Jean and David's Story

For Jean and David Ward, a motor neurone disease (MND) diagnosis came completely out of the blue. After dealing with other health issues, unbekno...
19 December 2024

MND NSW Reseach Grants

Thanks to your generous support, MND NSW has funded a grant as part of the 2025 MNDRA research grant program. Congratulations to Dr Abigail Pfaff from...
19 December 2024

Wayne and Margaret's Story

In the blink of an eye, Margaret Smith went from a NSW state representative lawn bowler to being confined to a wheelchair and unable to move, speak or...
18 December 2024

Christmas Closure Dates

MND NSW, including FlexEquip, will be closed for the holiday period from 12pm-midday Tuesday 24 December, reopening on Monday 6 January 2025. During t...
17 December 2024

Volunteer Spotlight - meet Claire

Claire Holloway has been carefully tending to the gardens at the MND NSW office in Gladesville for over 2 years now. She began volunteering for us in...
05 December 2024

Top-5 Frequently Asked Questions from November 2024

As we enter the final month of 2024, this will be the last frequently asked questions blog for the year. It is important to note that the MND NSW Info...