News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Share your Secrets this Dying to Know Day
Dying to Know Day is a national day that encourages Australians of all ages to start important and empowering conversations about death, dying and end...
Understanding Bulbar Motor Neurone Disease
Motor Neurone Disease (MND) is an umbrella term for a group of diseases. One disease classified as a type of MND is Progressive Bulbar Palsy (PBP). PB...
Calling all MND carers in NSW, ACT and the NT – Share your stories!
National Carers Week 2025 is fast approaching. This year it falls between 12-18 October. It’s a time to recognise, celebrate and raise awareness about...
Top-5 Frequently Asked Questions from June 2025
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from across NSW, ACT and N...
Supporting your loved one at end-of-life: General strategies for carers
MND is currently a life limiting illness. As it progresses, carers will find themselves in the position of supporting their loved one with MND at end...
Episode 3 of Conversation with a Neurologist is Out Now!
In this episode, Dr Sadaf Warraich speaks with Professor Steve Vucic, who discusses current MND treatments including Riluzole, Edaravone and Toferson...
Biobank, Organ & Tissue Donation: DonateLife Week
DonateLife week is a national awareness campaign that takes place each year in July. This year’s campaign is from Sunday 27 July – Sunday 3 August 202...
Community Fundraising Champions – Jo Moroney
Since 2015, Jo Moroney has been hosting the Dale’s Day cricket match in honour of her son Dale Kenny. Sadly, Dale was diagnosed with MND when he was j...
Hadrian’s Wall Walk for MND NSW – 135 kilometres in 6 days
Bev and Steven recently set off on an epic trek along Hadrian's Wall in support of MND NSW. Thank you for your amazing fundraising efforts, and for sh...
MND NSW Winter Appeal 2025 - A Letter from Nick
In early 2025, Anna said goodbye to her husband Nick, following his brave battle against MND. Anna and Nick shared many happy times together, but as h...
A day in the life of a MND carer: What you've told us
Between January and March 2025, we connected with carers who are part of the MND NSW Carer Program. We spoke directly to 84% of carers in the program....
Manual Handling for Carers
As carers we often find ourselves doing tasks that we never imagined we would be doing to support the people we love the most, especially with daily l...